controversy

Can Culture Protect Genetics From Misuse?

Robert W. Sussman, a professor of anthropology at Washington University in St. Louis, says that science has struggled to understand the mysteries of “less-than-human” beings since the late 1400s when the Spanish Inquisition first formalized state persecution of Jews and Muslims.  And while the horrors of Nazi Germany exposed fatal flaws in science’s quest to build the master race, the…

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Why We Have a Right to Consumer Genetics

A reporter from the MIT Technology Review discusses her experience of consumer genetics company 23andme, and reviews the future relationship between consumer genetics and the health industry.  An excerpt follows, please click here for the full article. “For now, the biggest problem with consumer-friendly genetic products is simply that they may be medically inconclusive for most people. Indeed, I was…

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2012 | Saving Babies?: The Consequences of Newborn Genetic Screening

Congratulations to ISG faculty Stefan Timmermans and Mara Buchbinder on the publication of their book, “Saving Babies?: The Consequences of Newborn Genetic Screening (Fieldwork Encounters and Discoveries)”. Abstract: It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis…

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Genome Sequencing For Babies Brings Knowledge And Conflicts

ISG fellow Stefan Timmermans is a contributing scientist on NPR’s “All Things Considered” discussing whole genome sequencing for babies.  Parents who have their babies tested are faced with many questions, such as if and when to tell the child that all their genetic information is available or whether they, the parents, want to know all their child’s genetic information themselves. Read/Listen…

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