Raphaël Albospeyre Thibeau
Education
2011-2012: Master of Social Sciences 2 “Health, Population and Social Policies”, EHESS (Paris), with honors. Director of memory: Ilana Löwy. Subject: “The medical profession deal with intersex body – Study of” national reference center for rare diseases of sexual development ”
2010-2011: Master of Social Sciences 1 “Health, Population and Social Policies”, EHESS (Paris)
2009-2010: BA in Sociology (Minor Anthropology), University Paris 8 (Saint-Denis), with honors
Research Topics
DSD medical management, therapeutic innovations, and bioethics developments.
Thesis in progress
Therapeutic innovations between technical and social aspects of medicine, between medical expertise and patient involvement. Support variations sexual development
Research Project: therapeutic innovations and their impact on medical expenses taken into variations of sexual development (conditions of people born with external genitalia, gonads and / or karyotype ranging from social norms defining the female body and males). It is observed how the technical and social innovations grow and transform supported, and if they result in a change in expectations and patient satisfaction.
A socio-anthropological research will be conducted in three national contexts in a comparative perspective (prospective land: France, Switzerland, Serbia). In the French and Serbian context, the question seems central technical improvements. For the Swiss medical team, it is the voice of patients and associations claiming non-intervention seems especially to have guided innovation. In each of these cases, there is the experimental dimension of practices whose aim is always to improve the patient’s condition, although they sometimes follow divergent paths.
These developments pose intimate and social issues for patients and their families but also ethical issues for practitioners who prefer dynamic therapeutic innovations in the interest of patient faster or slower, more or less radical and more or less encouraging communication between technical expertise and social expertise, experience between clinical and intimate experience. These different approaches raise the question of the relationship between medical expertise and control bodies / identities, mechanisms of therapeutic innovation face of social demands and the modulation of these requests based on the technical bid.