A symposium jointly organized by the Institute for Society and Genetics (UCLA) and by Epigenetics, Data, Politics (CNRS/UCLA).
Genomics and epigenomics maneuver today in a data deluge. Mapping and sequencing the genome has become common, it produces now petabytes of data. Indeed, genomics was one of the disciplines in which the change of scale that characterizes ”big data” first occurred. The production, management and use of this kind and scale of data require a whole new labor organization. It generates new and unexpected consequences that are at the same time social and scientific. A core aim of these data is to allow a “personalized” medicine. How did these new data end up transforming medicine? What is a very “person” when it is defined only by its genome? Is a genome enough to define health and disease? Are these persons cured and/or exposed by the capture of their data? It is the aim of this symposium to discuss social and scientific questions around big data in genomics and epigenomics.
1:30-1:35pm – Welcome speech: Eric Vilain
1:55-1:45pm – Introductory Remarks: Emmanuel Didier
1.45-2:30pm – Vololona Rabeharisoa
2:30-3:10pm – Steve Horvath
3:10-3:40pm – BREAK
3:40-4:25pm – Catherine Bourgain
4:25-5:05pm – Jean-François Blanchette
This workshop is free and open to the public
Vololona Rabeharisoa, sociologist, professor, Centre de sociologie de l’innovation, Ecole des Mines de Paris.
Catherine Bourgain, Geneticist, Permanent fellow, Inserm, Paris.
Jean François Blanchette, Associate Professeur, Department of Information Studies, UCLA.
Steve Horvath, Ph.D., Sc. D., Professor, Human Genetics, Biostatistics, David Geffen School of Medicine, UCLA.
Emmanuel Didier, Epigenetics, Data, Politics, CNRS/UCLA
Hannah Landecker, Institute for Society and Genetics, UCLA
Brought to you by the UCLA Institute for Society and Genetics (ISG) and by Epigenetics, Data, Politics (CNRS/UCLA).
Friday, January 30, 2015