Media narratives shape public trust and participation in genetics research through framing, misinformation, and portrayals of ethical risk, often affecting trust in scientific institutions and willingness to share genetic data. Nevertheless, public engagement is essential for building diverse and scientifically reliable genetic datasets. Drawing on historical controversies such as the Tuskegee Syphilis Study and the Havasupai Tribe case, the paper highlights how ethical failures and sensationalized reporting can deepen public skepticism and reduce participation among marginalized communities. Responsible media reporting, transparent data protections, and adaptive consent models are critical to rebuilding trust and ensuring the future success of ethical genetics research.
About the Author
My name is Cassidy Lo, and I grew up in Orange County, California. I am currently a senior at UCLA majoring in Biology with a minor in Society and Genetics. I am passionate about patient advocacy, public health, and pediatric healthcare, with a particular interest in empowering patients to take an active role in their care. I plan to pursue medical school and become a primary care pediatrician, where I hope to continue fostering collaborative, patient-centered care.